Meetings and publications | |
>> VHPB meetings |
Viral Hepatitis Prevention Board
European Liver Patients Association
Meeting
Lucca, Italy, March 13-14, 2008
Prevention and Control of Viral Hepatitis :
The role and impact of patient and advocacy groups in and outside Europe.
Thursday, March 13, 2008
Session 1 Opening and objectives
Chair: Pierre Van Damme - Nadine Piorkowsky
09.00 - 09.30
Session 2 Viral hepatitis prevention in Europe
Chair: Pierre Van Damme - Nadine Piorkowsky
09.30 10.00
Update on prevention and control of hepatitis B in WHO European Region. 1Mb (.pdf)
Liudmila Mosina (WHO/EURO)
Session 3 Role and impact of patient and advocacy groups
Chair: Daniel Shouval Paolo Bonanni
10.00 10.30
Prevention and control of viral hepatitis; the role and impact of liver patient groups in Europe: general considerations. 309Kb (.pdf)
Nadine Piorkowsky (European Liver Patient Association)
10.30 11.00
European patient groups for rare diseases. 810Kb (.pdf)
Michele Lipucci di Paola (European Organisation for rare diseases)
11.00 11.20 Coffee Break
11.20 11.50
Prevention and control of viral hepatitis in the US; the National Viral Hepatitis Roundtable. 1.3Mb
Deborah Wexler (Immunization Action Coalition)
11.50 12.10
Luc Hessel (European Vaccine Manufactures)
12.10 13.30 Lunch
Session 4 Role and impact of patient and advocacy groups: country presentations
Chair : John Ward Selim Badur
13.30 13.50
Belgium: Carrefour Hιpatites-Aide et Contact // Vereniging voor hepatitis C patienten. 946 Kb (.pdf)
Muriel Colinet // Marie-Fabienne Van den Berghe
13.50 14.10
Bulgaria: Hepasist. 5.9Mb (.pdf)
Stanimir Hasurdjiev
14.10 14.30
Croatia: Hepatos. 356Kb (.pdf)
Tatjana Reic
14.30 - 14.50
Germany: Deutsche Leberhilfe. 54Kb (.pdf)
Achim Kautz
14.50 15.10
Italy: EpaC. 635Kb (.pdf)
Ivan Gardini
15.10 - 15.30 Coffee Break
15.30 15.50
Poland: Prometeuze. 75Kb (.pdf)
Ilona Sikorska
15.50 16.10
The Netherlands : National Hepatitis Centre. 77Kb (.pdf)
Paula Van Leeuwen
16.10 16.20
UK: British Liver Trust . 470Kb (.pdf)
Sarah Matthews
16.20 16.40
US: The Hepatitis Foundation International. 62Kb (.pdf)
Thelma King Thiel
16.40 17.00
Advocating for immigrant communities at risk. 1.3Mb (.pdf)
Samuel So
17.00 17.10
Summary by the chairs and close of the day
Friday, March 14, 2008
Session 4 Role and impact of patient and advocacy groups: country presentations (continued)
Chair : Craig Shapiro Wolfgang Jilg
08.30 08.50
France: SOS Hepatites, National Federation.
Pascal Melin
Session 5 Initiatives to get attention and increase awareness on prevention and viral hepatitis
Chair: Craig Shapiro Wolfgang Jilg
08.50 9.15
The European Immunization Week. 857Kb (.pdf)
Liudmila Mosina (WHO/EURO)
9.15 09.40
World Hepatitis Day (WHD). 57Kb (.pdf)
Charles Gore
09.40 10.05
Hepatitis B priority area for European policy; Call for action by the European Parliament. 82Kb (.pdf)
Charles Gore
10.05 10.20 Coffee break
Session 6A ParalIel break-out session Group I
Chair: Steven Wiersma Daniel Lavanchy
10.20 11.30
Topic: Identification of weaknesses; limitations and thresholds of impact of patients groups on control and prevention of viral hepatitis
Session6B ParalIel break-out session Group II
Chair: Franηoise Roudot-Thoraval - David Goldberg
10.20 11.30
Topic: Identification strengths and opportunities of liver patients groups towards the control and prevention of viral hepatitis
Session 7 Feedback break-out sessions
11.30 11.45 Report of Group I
11.45 12.00 Report of Group II
12.00 14.00 Lunch
Session 8 Conclusions of the meeting
Chair: Johannes Hallauer Nicole Guerin
14.00 - 15.00
Presentation of the VHPB meeting conclusions. 76Kb (.pdf)
David FitzSimons
15.00 - 15.30 Discussion
15.30 Close of the meeting